[add to authors: on behalf of the ASSET-Stroke project team]
Introduction: Listening to the voices of people with lived experience in clinical practice and in research is essential to achieve desired outcomes.
The aim of this project is to outline the methodological approach for the co-creation of a website to build self-efficacy after a stroke.
Methods: Integrated Knowledge Translation Methodology, using participatory and human centre design processes so that people with lived experience (stroke survivors and carers), were involved from conception to completion. Two people with lived experience of stroke (1 survivor, 1 carer) were co-investigators and helped prepare the grant application and attended project meetings. A lived experience working group was convened to co-design and plan customised features for the website.
Results: The lived experience workgroup initially comprised 14 survivors and one carer. One workgroup member was invited to join the project team and co-facilitated all workgroup co-design meetings. Nine rounds of online co-design meetings were held to identify the priority content to include, features to include and avoid, website layout and outcomes to measure effectiveness. Information from co-design meetings was provided to the project team and incorporated into the website design.
Conclusion: This project has seen the development of a website to support self-efficacy in people after stroke. It has successfully applied a co-design, consumer driven website development approach, ready for user testing.
Relevance to clinical practice or patient experience: This methodology, where people with lived experience of stroke work alongside clinicians or researchers can be applied to clinical and research projects to achieve project outcomes.